Day 32...
The plan as we understood it was to have Nevan spend 2 days in the hospital, this wednesday and thursday. We went for his finger poke Wednesday morning as scheduled. He was a brave little boy as always. He cries about it everytime yet still holds out his finger and allows the nurse to do her thing. We get upstairs to clinic, grab his wrist band and take a number. I walk over and write his name on the number as well as his initials NHL. Nurse Judy comes to talk to us. She tells us that his blood counts are still too low to proceed as scheduled. We will have to go home and come back tomorrow morning. She sends us for another finger poke Thursday morning to see if his numbers have come up. It's rare but if they do we can proceed right away. If not we must wait yet another week. Regardless he will be given another special sleep and a bone marrow biopsy will be done and we will have results within 24 hours.
The results will be whether he is in remission or not. Stay tuned for a specially named post REMISSION!!
Today is Thursday and we went for finger poke first thing. His numbers are not only up but the one we were watching more than doubled! In short his body is ready for the battle ahead. My brave little boy is more than brave, he`s a warrior. Today he had a special sleep where they gave him a bone marrow biopsy, lumbar puncture, PICC dressing change and a new NG tube put in. Tomorrow we should get the results from the biopsy. He will also finish the second phase of chemo. Nevan will receive an injection of High Dose Methotrexate. Followed by a 23hr IV drip. He will then stay in hospital for as many more days as necessary to pee out the chemical as it is extremely toxic. We will update blog as soon as we have results and more news...
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