Were going to Disney Land!!!!....

....in Nov 2014!

Nevan has been chosen by the Guelph Wish Fund for Children to be a wish kid!  For all the bravery, strength and courage he has shown and is going to have to show for the next 2+ years, he is being rewarded with... pretty much what ever he wants!  A very fitting prize in our minds, especially after this mornings trip to clinic.... but we'll get to that later! 

Peter Baldasso from the Guelph Wish Fund came to visit Nevan shortly after he came home from the hospital a few weeks ago and let our family know the great news that they will be granting a wish for Nevan.  As Nevan was smack dab in the middle of his steroids treatment and craving noodles like a drug addict... we gave him some time to decide what he wanted out of fear that he would just ask for a lifetime supply of noodles! lol  We asked him over and over just incase his mind changed, but it never did.  The answer was always "I want to go to Disney Land!"  So off to Disney we go!  After all his treatments are done and he has had a month or so to recover, The Guelph Wish Fund will send our family on an all expense paid trip to Disney Land for Nevan's 7th birthday in Nov 2014.  This is a great choice as this is the only thing we won't be able to do on our own.  Everything else we can probably handle, but currently Nevan is uninsurable and can't travel out of country.  The Guelph Wish Fund will help us outsource and pay for the insurance we need to travel.  By that time Nylah will also be old enough to enjoy the trip thoroughly and be able to make memories a lot better than now. 

Yesterday as the 2 little ones were carrying on in the living room, chasing each other and laughing, the fun was interrupted with a blood curdling scream.  I think Craig and I knew what happened before we even turned around.  Nevan was holding his nose tube in his hand screaming with the biggest look of shock ever! In the midst of the craziness his Nose Tube got caught under Nylah and it pulled the tape right off his face.  I ran over and pulled it the rest of the way out while Craig sat him on the couch to calm him down.  It didn't take long for him to stop crying as he instantly felt better.  Within seconds he was smiling again and very happy to have nothing stuck to his face.  Craig and I were far more emotional about the situation than he was as this was the first time we had seen his entire face in months!  What a beautiful face!

Shortly thereafter the air was filled with another blood curdling scream... this one from Nylah.  She didn't come out as well however.  She was playing in the kitchen, tripped and fell face first into the kitchen table!  She smacked her two front teeth and upper lip on the edge of the table.  She banged it good, and blood started flowing!  Thankfully she is still on a bottle and that was all it took to calm her down.  This morning her upper lip was still swollen and her gums quite bruised.

After an eventful evening we were looking forward to a calm trip to clinic... but that was a bit of wishful thinking.  Nevan was going to get chemo in his port for the first time and also have a leg needle for the first time while awake.  We have "magic cream" here which we apply to both his  port site and his leg before we left, but nothing took away the scary sight of the needle coming towards his chest!  More screaming.  After the IV Chemo, Nevan recieved his leg needle.  Now although we had the numbing cream to make his skin feel better, there is nothing we can do to numb the feeling of the medication going into his muscle... it burns... alot!  and even more screaming.   On the wall of the clinic there is a poster will all the kids names listed and 30 squares beside each name.  Nevan was allowed to put a sticker on the poster and like only a kid can do... forgot all about the pain and was engrossed in choosing the perfect sticker for his name!  We stayed for 45min to have his vitals checked and we headed home without a new nose tube!  We decided to give Nevan a try at taking his meds orally since he felt so good not having the nose tube in.

We tried our best to persuade Nevan to take some pills as we were just as hesitant to get the NG tube put back in as he was, but he just wasnt ready to take that step.  After an hour or so of trying, Nevan decided he wanted to put the nose tube back in.  We applauded his efforts so he didnt feel like he failed and we headed back to clinic in the morning.  The nurses put the nose tube into a petrified Nevan but chose to use the other side.  This caused Nevan to cough and gag uncontrollably for about an hour as we waited for it to subside.  Frustrated and utterly exhausted we watched Nevan give in and allow the nurses to again remove the tube and try the other side again.  This time it went well and we took a worn out boy home to sleep the rest of the afternoon. 

Yes, I think a trip to Disney is exactly what this family needs... we will mark the days off the calendar for 2 years... one by one until we are breathing a sigh of relief on a flight to Florida.

Cute Story of the Day:
Nevan and I are sitting on the couch watching Cars 2 for the thousandth time.  I turn over to Nevan...

Me: "Nevan.... I love you like Crazy!"

Nevan stops watching his movie and takes my face in his hands.  I am bracing myself for the sweetest comment a 4 year old can give...

Nevan: (with extreme sincerity) " Mommy.... I love you like Spinach..."  He Kisses me and goes back to watching his movie.

hmmmm.... I think I will take it for the sweet moment it was and not focus on the fact that Nevan always pushes the spinach to the side of his plate...