Friday, July 27, 2012

What's your favorite colour?

Nevan is on his third day of intense Chemo and is doing far better than we expected him to! The doctors and nurses are very happy and a bit surprised that he is still eating and that he is now taking his meds no problem. I decided to switch Nevan to pills instead of liquid meds, hide them in a spoon full of apple sauce and he takes them with hardly any hesitation! We still get the usual "I'm not so sure about this!" but I think it is only to prompt the inevitable "Wow! You're so brave!" speech. I stayed with Nevan for 2 days in a row and then switched off with Craig for one night and I am back here for another 2 nights. Craig is at home trying to prepare the house for Nevan's return home. There is a lot to do to prepare the house. Considering we had only moved in 1 month prior to Nevan getting sick, we were hardly even settled. Nevan's first chemo treatment was done while he was sedated. The first time they administered it while he was awake shocked me to the core. In walked Nurse Nicole, dressed in full protective gear. Full gown, tucked into gloves with a cap and goggles. This is to protect her just incase the syringe in her hand splashes on her. She needs to take such lengths to protect herself from this medication, yet this is what they are going to be pumping through my 4yr olds 35lb body in high doses for 2 years?!?! It was a punch in the stomach and to stand there with a smile and watch them do it was all the strength I could muster. I left a few minutes later for the long drive home, with my mind wandering to very dark places. But as my brother said, we should look forward to seeing her, because every time we do, we can tick one more day of treatment off our calendar. An evening with my Nylah cheered me right up however. Whether happy, tired, angry or playful, Nylah demands attention. On a typical day it is always demanded hardest when I am trying to cook dinner, take a shower or anything else that requires me not to have a toddler growing out of my hip. These days however, she is a very welcome (and adorable) distraction. Nevan has been tolerating treatment very well. He hasnt shown any of the side effects that we have been warned of so far. No nausea, stomach pains etc. his appetite is pretty good, he is drinking well and he loves to go for walks. So all in all it has been a fairly uneventful couple of days and I would be quite happy if it stayed this way. There actually was one very amazing, very cute thing that happened this evening. Nevan made a friend! Another 4 year old boy moved into the room next door having been diagnosed with the same thing only a few short days ago! They met in the hallway pushing their poles and wearing their Mickey Mouse Masks. In addition to their strange new medical attire, they both shared matching Cars Slippers and a love for spiderman. They were quite impressed with each other and after a brief and super cute conversation about their favorite colours and how drs make them cry, we all settled in the room down the hall to play with some transformers and to colour in some spiderman books. I chatted with his mom for a while, listening to her sadly familiar story and then we went back to our room. Nevan sat in his chair with a big smile, high on life again like a 4 year old should be! As we are brushing his teeth and turning out the light, Nevan tells me he has a new best friend... Yes, I think we will be visiting room 16 quite often! Cute story of the day: Nylah singing 'Itsy Bitsy Spider" "ipsy pider.... Up the wash out!... Out the suuuuuunnnnn.... Rain..... Again! Yay!" Best version I've ever heard!

1 comment:

  1. (dad) Yup best version of spider song ever! I laugh every time she demands, not asks, demands you sing it.

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